What is Monica doing on World Down Syndrome Day? Since we haven’t posted in a while, here are some notes about a typical day with Monica. After making her bed, Monica donned the crazy socks to start the day – … Continue reading
It is truly delightful when Monica conveys that she grasps a concept, a way of understanding, which is not concrete, such as in daily routines. We have often experienced that Monica understands concepts better than she is able to express … Continue reading
On Friday, January 19th, Monica participated in the March for Life with her brother Greg and her mom and dad. The foursome drove to Washington DC on Thursday and started Friday with holy mass to pray for the unborn. … Continue reading
Monica had another fun opportunity in May. She was invited to a Prom for young adults with disabilities. She invited her brother to be her escort. He was very good to her! As Monica’s older siblings have gone off to … Continue reading
We are fortunate in Cleveland to have great support for families affected by Down Syndrome. When Monica was born, I was given a flyer in the hospital with a number to call. I joined the Upside of Downs and got on their newsletter mailing list. I soon took advantage of many opportunities.
When Monica was approaching open-heart surgery, I was able to talk to another mother whose son with Down Syndrome had also had heart surgery as an infant. I attended a medical information night with several different medical professionals addressing problems common to individuals with Down Syndrome. I got hints on handling glasses and hearing aids for a young child. Many educational seminars have been held that were helpful to me – some on education issues, some on therapies and behavior. I have always learned a lot and enjoyed meeting other parents.
Another great benefit is the social opportunities for Monica. The Upside of Downs has held many fun activities that we have enjoyed. Some years our family life has just been so full of our own school and sport activities that we haven’t been able to attend many events, but it has been a great support just reading the newsletter.
Recently Monica attended two fun events planned by Upside of Downs. One was a Cleveland Indians game with friends.
Last weekend she went to Patterson’s Farm. Monica took a lot of photos, but here are a few she is in.
October is Down Syndrome Awareness month – fun things ahead! Looking forward to visiting City Hall on Monday, October 12th – Cleveland Down Syndrome Day.