More Medical Adventures

    • When Monica was little, I was sometimes overwhelmed with medical questions. Monica just had more issues than our other kids. Well, it does make sense. The statistics from the CDC show about 50% of babies with Down Syndrome have a heart defect, up to 75% may have hearing loss, up to 50% have sleep apnea, about 50% will require glasses, and up to 60% have eye diseases like cataracts and many have digestive tract issues. Over the years, Monica has proved that her medical events are just more adventures. I have included details about her open-heart surgery, frequent ear infections, broken ankle, and thyroid issues in other blog posts. She continues to charm her medical providers and her positive outlook makes these challenges easier.
    • When each medical question came up, I found myself searching for someone who had been through it before. How do you prepare a kid for surgery? How do you keep them from losing their hearing aids? So, I am going to share our latest adventure in case someone else is wondering….what if my child with Down Syndrome has to have an Endoscopy or Colonoscopy?
    • If you aren’t interested, feel free to check back for the next post!
    • Monica has been having frequent loose stools and with Celiac Disease common among people with Down Syndrome, not to mention that she has two brothers with Celiac, I thought we ought to do some testing again. She had had the blood test for Celiac in the past, maybe 10 years ago, but that doesn’t completely rule it out. After doing the new and improved blood tests, and including the newer genetic test, and stool tests, the gastroenterologist was pretty sure it could not be Celiac Disease, but couldn’t say what was wrong without ‘going in’.
    • The prep for the endoscopy and colonoscopy is similar to adults, but they actually try to be a little gentler with young people, spreading it out over a longer period. So beginning on a Thursday morning, Monica could have only clear liquids, a dose of stool softener, and then in the afternoon a series of Gatorade with laxative stirred in.
    • This is when the fun begins.
    • I highly recommend having brothers who will play games and yell ‘Chug! Chug!’ to keep the afternoon flowing…
    • Monica was such a good sport, giving reports after each trip to the bathroom.
    • She woke during the night to go a few times and had some stomach cramping, but really slept almost normally.
    • Friday morning, she could have only a few sips of water with her thyroid medication.
    • She packed her own bag for the surgery center. Games, coloring books, markers, prayer books, a favorite stuffed animal, stationery and her address book, photo books: enough to last weeks.
    • On arrival, she changed into the hospital gown folding her own clothes neatly into the bag provided by the surgery center.20160325_094643
    • I refused the pregnancy test for her and had to sign a form saying so.
    • The anesthesiologist asked her if she was too old for stickers and then decided to bring them anyway. Disney princesses.20160405_111623
    • She was trying to show the nurses some photos in her phone of her older brother’s trip to Rome, but we observed her speech was becoming slurred – the Versed was working already.20160325_113415
    • Soon, she was rolled away.
    • When they called me back in, she said, “I had a great nap!”
    • They let her choose Diet Pepsi and Oreos to help her wake up.20160325_114044
    • The gastroenterologist brought photos from each part she examined during the procedure. Monica was fascinated. She tried to match the photo label with the diagram showing where it was taken.20160405_103740
    • She was back to herself within an hour and we were headed home. She had no after effects from the procedure or the anesthesia!moni to blog
    • When we know more about results, I can write those too.
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